HISTORY
1967
Founded as the Muscular Dystrophy Research Association of WA (MDRA) in April 1967. In those early days, so little was known about muscular dystrophy that prevention and cures were thought possible. The Association aimed to support researchers to find and apply methods to prevent, control, or cure muscular dystrophy and related conditions. Today, we understand there are no cures, but research continues to focus on improving treatments and quality of life. AS the years progressed, a focus was taken to create a network of support, providing information, and advocating for better medical and community resources for individuals and families.
1970’s - 1980’s
Expanded family support, information services, and advocacy. During these decades, services grew to include regular family support gatherings and the development of printed information resources. Advocacy efforts also strengthened, aiming to improve access to healthcare, education, and disability rights.
1990’s
Introduced equipment grants and broadened community programs.The 1990s saw the introduction of an equipment grants program to help members access mobility aids and other essential items. Community programs expanded to include social events and condition-specific information sessions.
2000’s
Launched peer networks and major fundraising events. Peer networks were formed to connect individuals living with similar neuromuscular conditions, fostering mutual support. Large-scale fundraising events began to provide sustainable income for services and research.
2010
First Big Red Walk to raise awareness and funds. The first Big Red Walk was held in 2010, bringing the community together in a highly visible awareness and fundraising event. The walk quickly became an annual tradition and a signature event for the organisation.
2015
Established the Neuromuscular Nurse Service in WA. A dedicated Neuromuscular Nurse Service was established in 2015 to provide specialised care coordination for people living with neuromuscular conditions. This service has since become an essential link between families, specialists, and hospitals.